Friday, January 15, 2010

Almost 2 months with KAFO braces!!

Wow! The time has gone by so quickly. Hannah is doing far better than we ever could have imagined. She is able to get around pretty easily in her braces and continues to wear them 23 hours a day. She doesn't complain about having them on, but smiles brightly when she gets to take them off and run around for an hour! We had our follow-up appointment with Hanger yesterday and were told that she is doing well and that they even consider us "model parents". I was glad to hear that our hard work and struggles are making a difference. The orthosist even asked us where we got her leggings that she wears under her braces. We were happy to recommend BABYLEGS to other parents as they have really helped in keeping Hannah comfortable and warm while wearing her braces. The Supersoft babylegs are working great in this colder weather, they do not leave indentation/ crease marks on her skin, and feel so soft. We have tried cutting off girls' knee high socks but they just don't do the trick. I would highly recommend them to any child in KAFO's!

We have also discovered an advantage to KAFO braces. The braces are able to slow her down just enough for us to be able to keep up! When we take the braces off, she is on the GO...climbing, jumping, etc. and getting into trouble! Also, since transitioning her to her "big girl bed" she is not able to get out of bed with the braces on so this makes it more difficult for her to play with her toys and cause trouble when she should be sleeping.

We have also hit a milestone mark....Hannah has now gone an entire day (including naptime) without wetting her underwear! She is even able to sit herself on the little potty chair with the braces on! She is truly amazing. We are so excited that we are turning a corner here as well and may only have 1 child in diapers at a time!

Please continue to pray Hannah will not have to wear these braces forever....we have seen initial progress, but progress has slowed and there is no way to know how it will progress at this point. We plan to ask the Orthopedic specialist at her next appointment just how long she may have to wear them in order to maintain the progress she has made. We would hate to have come so far only for the Blount's to take over again. We really would not want to opt for surgery in the future so please continue to pray for us as we discover what lies ahead.

No comments:

Post a Comment